American Association of University Affiliated Programs

for persons with developmental disabilities


2000 Annual Meeting
in conjunction with

11th IASSID World Congress


New Millennium:  Research to Practice


August 1 – 3, 2000

Sheraton Seattle Hotel and Towers



Table of Contents


President’s Greeting  .          .          .          .          .          .          .          .          .         2


Message from the Program Chair  .          .          .          .          .          .          .         3


An Invitation          .          .          .          .          .          .          .          .          .          .         4


Acknowledgements .          .          .          .          .          .          .          .          .         5


Meeting Schedule          .          .          .          .          .          .          .          .          .         6


Council and Committee Overviews          .          .          .          .          .          .         8


Annual Reports          .          .          .          .          .          .          .          .          .          11


Agendas          .          .          .          .          .          .          .          .          .          .          18


Awards          .          .          .          .          .          .          .          .          .          .          26




AAUAP Past President’s List     .          .          .          .          .          .          .          28


AAUAP Board of Directors          .          .          .          .          .          .          .          .          29


2000 Annual Meeting Planning Committee          .          .          .          .          .          29


Meeting Room Floor Plan    .          .          .          .          .          .          .          .          30










Presidents Greeting


Dear Colleagues:


Welcome to Seattle and the 2000 Annual Meeting of the American Association of University Affiliated Programs for Persons with Developmental Disabilities. I am pleased that the venue of this year’s meeting allows us to participate in the 11th IASSID World Congress and to showcase our network and our members. The international nature of the World Congress is a unique opportunity for us.


AAUAP business meetings have been scheduled for August 1 through 3 to allow membership participation in the activities of the Congress. AAUAP member’s presentations are identified throughout the Congress agenda and are scheduled to maximize participation and exposure to all attendees.


I invite all of you to attend the UAP poster session, scheduled for Wednesday, August 2nd along with a reception that will be open to the full congress. These are terrific opportunities for us to socialize and share common interests and strengths with the international participants as well as with other disability groups from around the world.


It is my hope that you will find this year’s Annual Meeting to be informative and helpful in your work and I look forward to your active participation over the course of our meetings and the World Congress.





David M. Mank, Ph.D.










Message from the Program Chairs




Dear AAUAP Members and International Colleagues,


Welcome to the Annual Meeting of the AAUAP for the Year 2000.   Held in conjunction with the International Association for the Scientific Study of Intellectual Disabilities, this year’s program allows you to immerse yourself in a broad range of international research presentations, as well as engage in the customary meetings of AAUAP.   We invite new conference attendees and returning members to participate fully in any and all sessions of interest.  And, we hope that while you are here, you will not only enjoy the stimulation of the research and innovative practice presentations and the conviviality of colleagues, but also have the opportunity to experience the scenery, hospitality, and regional cuisine of the City of Seattle and the wonderful Pacific Northwest. 


The regional UAPs take particular pleasure in welcoming you to the Wednesday evening hosted poster reception, showcasing the work of the national UAP network, and to the hosted breakfast on Thursday morning, promoting international connections and dialogue.   These two events have been made possible through the generosity of the UAPs of Hawaii, Southern California, Oregon Health Sciences University, Idaho, Washington and Alaska, as well as Exceptional Parent Magazine and the President’s Committee on Mental Retardation. 


On behalf of the planning committee, we hope you enjoy this year’s conference.




Bob Stodden, Ph.D.                                             Gloria L. Krahn, Ph.D., MPH

AAUAP Conference Co-Chair                             AAUAP Conference Co-Chair and

IASSID Liaison                                                     President-Elect







An Invitation





You are cordially invited to attend the




AAUAP Poster Session & Reception

Wednesday, August 2, 2000

4:15 to 6:00 pm

Room 6B & 6C

Washington State Convention Center


Poster presentations on over 80 innovative projects, research efforts and works in progress on behalf of persons with disabilities and their families. 

Materials from many UAPs will be available.



And you are cordially invited to the



International Breakfast

Thursday, August 3, 2000

7:30 am

West Lobby

Washington State Convention Center




We would like to acknowledge and thank the following organizations

for their financial support of the


AAUAP Poster Session and Reception

Wednesday, August 2, 2000 at 4:15 pm

Room 6B & 6C

Washington State Convention Center




International Breakfast

Thursday, August 3, 2000 at 7:30 am

West Lobby

Washington State Convention Center



Exceptional Parent Magazine


President’s Committee on Mental Retardation



And the following regional University Affiliated Programs


Center for Human Development

 University of Alaska


University Affiliated Training Program

University of Southern California


Center on Disability Studies

University of Hawaii


Center on Developmental Disabilities

University of Idaho


Oregon Institute on Disability & Development

 Oregon Health Sciences University


Center on Human Development and Disability

University of Washington





 Schedule for AAUAP 2000 Annual Meeting


Please Note:    All meetings are in the Seattle Sheraton Hotel and Towers except for the Poster Session which is in the Convention Center





Monday, July 31, 2000


8:00 am - 4:00 pm                                Madrona                      Board of Directors Meeting





Tuesday, August 1, 2000


 8:00 am  - 12:00 pm                                Cedar Room                LEND Directors Meeting


 9:00 am  -   1:00 pm                                    East Room A             Council on Consumer Affairs


12:00 pm  -  1:00 pm                                                                        Lunch Break on Own


12:00 pm  -  3:00 pm                                    East Room B             UAP Directors Lunch & Meeting


  1:00 pm  -  3:00 pm                                    East Room A             Nat’l Training Directors Council




  3:00 pm  -  5:00 pm                                    East Room A             National Community Education                                                                                                           Directors Council


                                                            East Room B             ID Council


                                    Juniper Room                LEND Work Groups





Wednesday, August 2, 2000


  9:30 am  - 10:00 am                                  East Room A             New Attendee Orientation


10:15 am  - 11:00 am                                  Juniper Room                Business Meeting                     


11:00 am  -   12:30 pm                                  Room 418                   Technical Assistance Task Force


Room 420                        Community Services Workgroup


                                                            Room 424                   Council on Consumer Affairs


12:30 pm -    1:00 pm                                                                        Lunch on own


Wednesday, August 2, 2000


  1:00 pm –  1:45 pm                        Federal Agency Perspectives:  Concurrent Presentations

and                               Federal agency representatives will provide information on current

1:45 pm –  2:30 pm            and upcoming activities, funding priorities and policy initiatives within their agencies.  This session is offered twice so that participants have the opportunity to attend two agency sessions in small group settings.


East Room A                             Ann Drum, D.D.S., M.P.H., Director, Division of Research, Training, and Education, Maternal and Child Health Bureau (MCHB)

                                                Denise Sofka, Project Officer, Division of Research, Training and Education, Maternal and Child Health Bureau (MCHB)


East Room B                             Duane Alexander, Director, National Institute of Child Health and Human Development (NICHD)    


Cedar Room                              Sue Swenson, Commissioner, Administration on Developmental Disabilities (ADD)

Reginald Wells, Deputy Commissioner, Administration on Developmental Disabilities (ADD)


 2:30 pm -    4:00 pm                                    Room 418                   Health Care Committee


  4:15 pm -   6:00 pm                                    Convention Center             AAUAP Poster Session/Reception

                                                            Rooms 6B & 6C


Thursday, August 3, 2000


  9:00 am  -   1:00 pm                                    West Room B             Pacific States ADD Convening

   (continues in afternoon)


10:30 am  -  12:30 pm                                  East Room A             Multicultural Council


11:00 am  -  12:30 pm                                  Cedar Room                Health Promotion and Disability

   Prevention Committee


Room 418                        Data and Outcomes Committee


12:30 pm  -   1:00 pm                                                                        Lunch Break on Own


  1:00 pm  -   2:30 pm                                    Metropolitan                  Sue Swenson, ADD Commissioner

                                                                                    `            AAUAP Awards Ceremony


  2:30 pm  -   4:00 pm                                    East Room A             Joint Meeting of International

   and Research Committees


East Room B                 Joint Meeting of Legislative Affairs

                                         Committee and Assistive

  Technology Work Group


Cedar Room            Central Conference of University

     Training Programs in DD


2:30 pm – 5:30 pm                        West Room B                        Pacific States ADD Convening



AAUAP Councils and Committees

The AAUAP Board of Directors has established a number of committees, work groups and task forces made up of experts in the field to help the board address emerging trends and issues, and to facilitate communication across and beyond the AAUAP network.


Board Program Committee

The Board Program Committee assists and provides leadership on content issues.   This Committee monitors progress of contract deliverables and assists in the development of the AAUAP Vision Paper and position statements.  The committee assisted in the development of an AAUAP fellowships/internship program.  Further, the committee works in tracking legislative affairs, and assists in the development of an approach to grant proposals.


Council on Consumer Affairs

            The Council on Consumer Affairs advises and assists AAUAP in enhancing the quality of life for persons with developmental disabilities and their families. The Council on Consumer Affairs accomplishes this through its member representation on the AAUAP Board of Directors and other pertinent AAUAP Committees. By providing the consumer’s perspective on issues of concern, including cultural diversity issues to these committees,  the Council on Consumer Affairs  helps to build AAUAP’s capacity to better meet the needs of individuals with disabilities and their families.


Health Care Committee

            The Health Care Committee was formed in 1993 to: (1) provide a focus within the network for emerging health care reform issues, (2) monitor the progress of reform at the national level through AAUAP participation in other consortia and advocacy organizations, (3) identify opportunities and roles for UAPs to work within home states and communities to ensure and encourage the inclusion of people with developmental disabilities and their families in health care reform policy and decision making, and community-based care opportunities, and (4) provide a forum for the membership to consider and have dialogue regarding health care and reform issues relevant to their programmatic interests.


Health Promotion and Disability Prevention

            The Health Promotion and Disability Prevention Committee provides AAUAP alliance with the national efforts of various groups and agencies in the field of prevention. Collaboration is specifically offered to the American Association of Mental Retardation (AAMR), ARC/US, the Centers for Disease Control (CDC) and the President’s Council on Mental Retardation (PCMR). In addition, the Committee provides information to UAPs on relevant trends, statistics, new knowledge, and pending legislation. It works to seek out projects and opportunities that sustain wellness and prevent secondary conditions in persons with disabilities. The Committee also provides information about activities of interest in individual UAPs that support modern prevention goals.






Data and Outcomes Committee

            The Data and Outcomes Committee assists in the development and maintenance of the AAUAP network data collection system. The data collection system provides data and information to AAUAP committees, the AAUAP Board of Directors, and other parties as the Board directs, to support the development of AAUAP evaluation, planning, and policy activities. The Data and Outcomes Committee is also responsible for overseeing the MCHB and ADD grants that support the UAP network data collection effort.


Interdisciplinary Council

            The Interdisciplinary Council works with issues of concern to the core disciplines within the UAPs and acts as a conduit for information to go to and from the Board of Directors and the various disciplines. Each discipline in the UAPs is represented on the Interdisciplinary Council. The members of the disciplines they represent elect representatives.


International Committee

            The International Committee serves as an information collection and exchange mechanism for UAPs and programs throughout the world that serve persons with developmental disabilities. The Committee determines the feasibility of preservice and in-service training exchange programs; and coordinates, arranges, and provides technical assistance and consultation on program development or program modification to any country or program making such request. The committee also facilitates the development and planning of international presentations, workshops, and other activities appropriate for international conferences.


Legislative Affairs Committee

            The Legislative Affairs Committee provides information to the AAUAP membership, Congress and the Federal Administration. This information is submitted to the Board of Directors and used to formulate and implement legislation that effectively meets the needs of individuals with disabilities and that otherwise contributes to the missions of the UAPs and MRDD Research Centers. The Committee tracks and monitors new and existing legislation, and federal appropriations, and solicits for new legislative provisions from AAUAP membership. The Committee also establishes mechanisms for expanding the participation of individual UAPs in grass roots legislative efforts.


Multicultural Council

            The Multicultural Council advocates on behalf of the cultural diversity and cultural competence mandates of the Developmental Disabilities Assistance Bill of Rights Act by providing support, technical assistance, and input on policy to AAUAP. The Council recruits and develops new leadership committed to the multicultural mission of the AAUAP. The Council incorporates considerations of cultural diversity and cultural competence into the deliberations of all standing AAUAP Committees and facilitates the active involvement of all UAPs in the AAUAP Caucus on Cultural Diversity. The Council has also established a formal and funded initiative to serve in the multicultural assistance needs of the AAUAP and member programs.





National Community Education Directors’ Council

            The National Community Education Directors’ Council is comprised of the Outreach Training Director/Coordinator, or a designee who best represents the overall outreach training interests, of each member program of AAUAP. The purpose of the Council is to: (1)

serve as a focus and forum for the identification, discussion, and resolution of problems and issues regarding outreach training; (2) function as a representative voice of the outreach training interests and concerns within the UAP network; and (3) influence the development and implementation of national outreach training policies and initiatives.


National Training Directors’ Council

            The National Training Directors’ Council serves as a forum for the identification, discussion, and resolution of issues affecting interdisciplinary training. It represents training concerns within the UAP network, and as such, to influence overall policies and procedures that affect training. In addition, the NTDC acts as a communication vehicle for the implementation of national training policies through liaison with other groups.


Research Committee

            The overall mission of the Research Committee is to enhance the quantity and quality of research produced by the membership of the AAUAP and to encourage utilization of research findings in program design and implementation. This is accomplished by increasing the awareness of the network to the contributions and roles of research in the areas of training, service, dissemination, and policy. Related activities fostering interactions with scientists in Developmental Disability Research Centers, conducting seminars on high priority topics in the disability field, and promoting multi-site research projects within the AAUAP network.



















1999/2000 Annual Report


At the AAUAP Annual Meeting in November 1999 the Council on Consumer Affairs (COCA) elected Sharon Ely as co-chair of the Council.  Sharon Ely represents the UAP of Indiana,  Indiana Institute on Disability and Community. She is a Family Support Specialist at the Indiana Institute.


One of the charges of the Council on Consumer Affairs was consumer involvement on AAUAP councils, committees, and task forces.  At the November 1999 meeting, of the Council, a discussion was held as to the best method to accomplish this. Informal strategies have been used in the past, however the Council now feels it is imperative to develop a more formalized approach.  Strategies for pursuing consumer involvement in these meetings were presented and evaluated. Implementation of these strategies will begin at the next AAUAP Meeting.


COCA has also begun to develop a new directory of members.  It will include a listing of each member’s area(s) of expertise which will facilitate the use of the Council by various UAPs.


The Council on Consumer Affairs has been actively involved with legislative issues.  As members of individual UAP consumer councils, we have been active in lobbying our State and National representatives on issues that are of importance to persons with disabilities.


Consumer networking is always of importance to the COCA members. This past

year has included the presence of the Council at the IASSID conference and ways to network with consumers internationally.


--Submitted by Sharon Ely, MS & Norb Ryan, Co-chairs





1999/2000 Annual Report


The mission of the Council is to identify the mutual needs of training directors from the UAP network and to promote collaborative actions to improve the effectiveness of interdisciplinary training.   The Council fulfills this mission to the Association and its constituent membership by pursuing the following goals and objectives:

• To serve as a forum for the identification, discussion, and resolution of

issues affecting interdisciplinary training.

  To serve as a representative voice of the training concerns within the UAP network, and as such, to influence overall policies and procedures that affect training.

• To act as a communication vehicle for the implementation of national training policies through liaison with other groups.


The NTDC was active with a number of projects this year.  Highlights of this year’s Council activity include:


            • The Steering Committee conducted a network-wide survey of UAP core curriculum requirements.  The survey was a web-based project facilitated by the Indiana UAP and Vicki Pappas as Chair of the NTDC’s Technology Sub-Committee.  Results will be summarized at the AAUAP Annual Meeting and presented at the IASSID conference later in the week.


            • The NTDC home page continues to be updated as new training directors come on board.  The directory, minutes of past meetings, descriptions of core curricula, and by-laws and listserv information are on line.  Two other fields are under construction.  The LEND training directors directory is now part of the AAUAP web page as a newly constructed and improved database.


            • The network continues to use the listserv to disseminate information across the country, to ask questions, and to gather information for individual training directors.


            • The NTDC will be presenting a session at IASSID entitled: Leadership Training in Developmental Disabilities: Facing the Challenges Ahead.  Individual Training Directors will also be contributing their work for the IASSID conference.


            • Preliminary work on a new Interdisciplinary Training Guide has begun and will continue at the 2000 annual meeting and throughout the next year.


            • The NTDC Nominations Committee is now chaired by Rita Hohlstein, Wisconsin.


            • NTDC members have been active in the AAUAP LEND work groups, creating information for the network on issues such as outcome assessment and program requirements.


--Submitted by David T. Helm, Ph.D., Chair





1999/2000 Annual Report


The National Community Education Directors Council (NCEDC) serves as a forum to address the core functions of community education and technical assistance for the AAUAP.  During the past year committees and members engaged in several activities.


The Technical Assistance Committee is charged with the duty of determining what assistance and/or information community education directors need to be successful in their positions.  A needs survey was completed and sent to community education directors.  A return rate of 62% was realized.  Based on the results of the survey, the Committee decided to put a quarterly advice column on the NCEDC listserv called Challenges, Challenges, Challenges.  The column highlights new and innovative ideas from the community education programs throughout the UAP network.


The Dissemination Committee is responsible for coordinating the update and dissemination of NCEDC products and information.  During this past year activity focused on the NCEDC website.  The website was moved from Wyoming to the AAUAP website.  Information, including training initiative (TIP) summaries, was brought up to date.  The committee is also developing a user-friendly protocol for community education summaries on the site.


The Cincinnati UAP took the opportunity to utilize their proposed training initiative project (TIP) to disseminate community services training materials and approaches.  The directors of community services TIPs offered support for this proposal and expect to participate in a conference, catalogue of materials, and e-commerce site during the coming year.


Members of the steering committee collaborated to develop a chapter in the association’s QES Manual.  Community education directors also provided input for testimony in support of the reauthorization of the Developmental Disability Act.  Members organized to submit presentations highlighting community training activities at the annual conference of the International Association of the Scientific Study of Intellectual Disability.  The awards committee has submitted nominations to AAUAP to recognize the efforts of outstanding community education directors.


--Submitted by Kathleen Olson, Ph.D., Chair





1999/2000 Annual Report


The mission of the ID Council is to perform the following function as a means of helping to meet the special needs, problems, and potential of persons with mental retardation or other developmental disabilities:


Provide a forum and other resources for collectively examining and advancing the interdisciplinary mission and program of training, service, research, and community program development

Define and promote the concept of interdisciplinary training, service, research, and community program development

Advise the executive board of the association on matters pertaining to interdisciplinary practice in training, service, research, and community program development

The Interdisciplinary Council is unique among councils of the American Association on University Affiliated Programs in that the membership of the ID Council consists of representatives from disciplines within university affiliated programs. Each discipline elects two representatives that serve on the ID Council and work with the ID Council on its mission. This organizational structure allows for diverse input from people in a variety of roles within their respective UAPs.


The following represents the accomplishments of the Interdisciplinary Council for 1999/00:


·       Developed a symposium on Interdisciplinary practices for the AAUAP/IASSID conference:  Interdisciplinary Challenges for the New Millennium: Training, Service, Community, Research.


·       Maintained the web page for the ID Council on the AAUAP web site.


·       Continued activities to define interdisciplinary practice for the AAUAP network and for the AAUAP web site.


·       Continued compiling descriptions of what interdisciplinary “looks like” for different disciplines in different settings.


·       Continued work on a compendium of interdisciplinary materials.


·       Began activities toward a revision of the ID Council mission statement.


·       Initiated activities to consolidate membership (i.e., insure representation by all disciplines).


--Submitted by Mark S. Innocenti, Ph.D., Chair




1999/2000 Annual Report


At the November meeting the Council agreed to establish an ad-hoc committee to develop, pilot and present the process in Seattle of an organizational self-assessment which has been completed.  This committee’s next task will be to develop training and technical assistance, which will support the UAPs in the utilization of the assessment tool.  The proposal for the presentation was submitted and accepted for the August meeting in Seattle.  Chana Hiranaka and Carolyn Richardson were co-chairs of the committee and will be co-presenters at the conference.  The committee consisted of:  Chana Hiranaka, Carolyn Richardson, John Meaney, Allison Ball and Roz Parrish.  The work was completed throughout the year via conference calls and e-mail.  A proposal was made to AAUAP for funding for data analysis.  The request was then made to the Administration on Developmental Disabilities to determine whether technical assistance funds could be utilized for such activity.  The request to ADD was approved and subsequently, funds will be utilized for the data analysis from the surveys.


Throughout the year, Tom Uno kept the members apprised of important issues from Washington and the Board. The Council also had input and involvement in the Annual Meeting agenda.  Through the Chair, the Council had input into matters related to Board program development, financial oversight, and Legislative input.  The Chair provided input into the Association’s  draft of the DD Reauthorization, and the latest  Projects of National Significance (PNS) priorities.


Next year, the Council will look at other activities that it might undertake for the Association to continue utilizing the vast resources and knowledge of its members.


--Submitted by Tom Uno, PhD, Chair





1999/2000 Annual Report


The goals of the community services workgroup are to:


Provide a forum for the exchange and dissemination of information, mutual support, and technical assistance to the ADD supported Community Services Training Initiative Projects (TIPs) and the UAP network


Foster the development and coordination of community supports which promote the interdependence, inclusion, and productivity of persons with developmental disabilities


Advocate for the continuing evolution of the direct service role to assure ongoing career development, worker retention, and job satisfaction


Serve as a resource to the UAP network on issues related to direct service training and personnel


Serve as a resource and disseminate state-of-the-art developments in direct service provision to state delivery systems, providers, consumers, and parent groups.


The community services workgroup has continued to meet, support members informally throughout the year, and disseminate information regarding community services training.  The workgroup participated in three major activities over the last year.  A poster presentation was made at the AAUAP annual meeting.  Members submitted highlights of their TIPs for inclusion in the legislative testimony for reauthorization of the DD Act.  Members unanimously supported the Cincinnati UAP in a TIP proposal to provide national dissemination of Community Service TIP materials and approaches.


--Submitted by Kathleen Olson, PhD, Chair




Tuesday, August 1, 2000




2000 Annual Meeting Agenda

Tuesday, August 1

9:00 am – 1:00 pm


       I.     Call to Order and Introductions


      II.     Approval of Minutes


     III.     Co-chair Report to Council


    IV.     Committee Reports

a.     Legislative

b.     Nominating

c.     Planning


     V.     Old Business

a.     COCA Participation & Representation on other Councils, Committees, Task Forces

b.     Survey

c.     Timing of COCA meetings


    VI.     Other Business

a.     Election of Secretary

b.     Awards Committee part of Nominating Committee

c.     Questionnaire to Chairs (Nancy J.)

d.     New Members


  VII.     Adjournment




Tuesday, August 1 continued




2000 Annual Meeting Agenda

Tuesday, August 1

1:00 pm – 3:00 pm


       I.                    Introductions & Attendance


      II.                    Approval of Nov. 4, 1999 meeting minutes


     III.                    Approval of Aug. 1, 2000 agenda


    IV.                    AAUAP Board report


     V.                    Committee Reports and Project Updates:

a.     Web-Site/Technology Committee

b.     Data Committee – long-term trainee follow up

c.     NDTC Survey summary

d.     LEND Training Directors: issues and supports needed

e.     Training Symposium Committee – 2001 planning

f.       Nominations Committee


    VI.                    Interdisciplinary Training Guide

Work Groups:

a.     interdisciplinary training

b.      core curriculum

c.     other or individual id training programs

d.     training directors’ role & mentorship guidelines

e.     outcome measures and follow-up


  VII.                    Work Group Reports


 VIII.                    2001 meeting in Bethesda, MD






Tuesday, August 1 continued



2000 Annual Meeting Agenda

Tuesday, August 1

3:00 pm – 5:00 pm


Meeting Objectives:

·        To facilitate interaction among members by introducing them to one another.

·        To update members on critical issues and activities in AAUAP affecting NCEDC members.

·        To familiarize members with formal and informal sources of information that will assist them in providing community education.

·        To identify NCEDC priorities for the coming year.

·        To establish committees and workgroups to address these priorities.


       I.     Opening Remarks, Introductions, and Update of Membership Roster


      II.     Approval of Minutes 11-4-99



     III.     AAUAP Board of Directors Report


    IV.     NCEDC Committee Reports

a.     Annual Report

b.     Steering Committee Report

c.     Dissemination Committee Report

d.     Technical Assistance Committee Report

1.     Ad hoc subcommittee on DD Reauthorization and TIPs

e.     Awards Committee Report


     V.     Other--Cincinnati TIP - Opportunities to Participate    


    VI.     Liaison Assignments


  VII.     Overview of Educational, Social, and Networking Opportunities with NCEDC Members at IASSID


 VIII.     Adjourn Business Meeting


    IX.     NCEDC Committee Meetings

a.     Priorities and Planning


     X.     Review of Committee Activities Planned for the Coming Year


Members are encouraged to bring materials highlighting their projects for display during the meeting.




 Tuesday, August 1 continued




2000 Annual Meeting Agenda

Tuesday, August 1

3:00 pm – 5:00 pm


       I.     Introduction (10 min)


      II.     Review of Minutes (10 min)



     III.     Election of New Executive Committee (20 min)


    IV.     Update on AAUAP (10 min)



     V.     Membership Consolidation/Issues (15 min)


    VI.     Interdisciplinary Compendium/Issues (15 min)



  VII.     Strategic Planning (15 min)


 VIII.     Database Information (10 min)



    IX.     Communication Issues (15 min)






Wednesday, August 2, 2000




2000 Annual Meeting Agenda

Wednesday, August 2

11:00 am – 12:30 pm


       I.                    Call to Order

      II.                    AAUAP Committee, Council and Task Force Assignments

     III.                    Unfinished Business

    IV.                    Adjournment





2000 Annual Meeting Agenda

Wednesday, August 2

11:00 am – 12:30 pm


       I.     Welcome and Introductions

      II.     Review Task Force Charge/Relation to the Program Committee of the Board

     III.     NCEDC Committee Reports

a.     Grants policy for AAUAP

b.     Leadership fellowship

c.     Program development opportunities

d.     Vision paper revisions

    IV.     ADD Technical Assistance Contract

     V.     Development of AAUAP Position Statements





2000 Annual Meeting Agenda

Wednesday, August 2

11:00 am – 12:30 pm


       I.     Introductions and Update of Membership Roster

      II.     Update of Community Service Project Activities

     III.     Cincinnati TIP (Opportunities to participate in proposed conference, catalogue, and e-commerce site)

    IV.     Discussion of Implications of the DD Act on TIPs

     V.     Identification of workgroup priorities for the next year




Wednesday, August 2 continued




2000 Annual Meeting Agenda

Wednesday, August 2

2:30 pm – 4:00 pm


       I.                    Elect a new chairperson, according to AAUAP rules.

      II.                    Determine the status of the Pew Center on Health Professions Report on developmental disabilities and managed care.

     III.                    Create a working group to develop a statement on managed care and developmental disabilities that could be endorsed by the health care committee, and the legislative and interdisciplinary committees.  This statement would then be sent for endorsement by the AAUAP council.

    IV.                    Identify new business.






Thursday, August 3, 2000




Meeting Agenda

Thursday, August 3, 2000

9:00 am – 5:30 pm


09:00   10:00               Pacific States continental Breakfast

10:00   10:20               Introduction of Guests / Audience                  

10:20   11:00               Legislative & program update Q&A    

                                                Suspension calendar

                                                Legislative comparison

                                                Projects of National Significance comments

                                                Sharing on collaboration, other

11:00   12:00               Discussion & special guests: Olmstead & quality assurance

12:00   01:00               Lunch and discussion

01:00   02:30               Break for Key Note Address

02:30   03:30               Discussion & special guests: Disability

03:30   03:45               Break

03:45   04:45               Discussion & special guests: Youth Transitions

04:45   05:30               Wrap up





Thursday, August 3, continued





2000 Annual Meeting Agenda

Thursday, August 3

10:30 am – 12:30 pm


       I.                    Approval of Minutes

      II.                    Announcement of Officers for coming year

     III.                    Report from Ad Hoc committee on self-assessment

a.     Decisions on what to do with pilot information.

b.     Initial planning for next steps of developing training and technical assistance to support UAPs in the utilization of the assessment tool.

    IV.                    Share Shop

     V.                    OTHER BUSINESS




2000 Annual Meeting Agenda

Thursday, August 3

11:00 am – 12:30 pm


            I.          Update on current status of database and its use throughout the network

           II.          Update on outcomes work within ADD

          III.          Discussion of the role and mission of the Committee

         IV.          Development of a draft action plan for the coming year

          V.          Discussion of membership and who needs to be involved

         VI.          Development of next steps and responsibilities





2000 Annual Meeting Agenda

Thursday, August 3

2:30 pm – 4:00 pm


I.                 Introduction of Members/Attendees

II.                Discussion of Committee’s Purpose and Ongoing Activities

III.               Discussion of IASSID Collaboration with AAUAP Annual Meeting

IV.              Discussion of Potential Follow-up Activities

V.               New Directions/Old Agenda Items




Thursday, August 3 continued




(Joint Meeting w/ Assistive Technology Work Group)

2000 Annual Meeting Agenda

Thursday, August 3

2:30 pm – 4:00 pm


I.                 Welcome and Introductions

II.                Review of Current Legislative Issues and Discussion of Action Steps Needed

a.     Appropriations

1.     UAPs

2.     MCH Block Grant

3.     IDEA

4.     NIH

5.     AT

6.     Other

b.     DD Act

1.     Review Status

2.     Discuss Necessary Actions to Achieve Passage

c.     Children’s’ Health Care Bill (Senate version of H.R. 4365)

1.     Review Status

2.     Discuss Necessary Actions to Achieve Passage

d.     Family Opportunities Act of 2000

1.     Review Status of both House and Senate bills

2.     Discuss Necessary Actions for Achieving Passage

e.     Discussion/Briefing on Other Relevant Issues Including:

1.     MiCASSA, IDEA, Lifespan Respite, Drug Prescription bills


III.               Planning for Next Year’s Agenda


IV.              Other Business




2000 AAUAP Honors



National Leadership Award

Sue Swenson
Commissioner, Administration on Developmental Disabilities


For her outstanding national leadership, innovative guidance and unwavering commitment to improving and enhancing the lives of people with developmental disabilities and their families, and for her steadfast and insightful support of the programs and organizations that work on their behalf.


Distinguished Achievement Award


Marvin G. Fifield, Ed.D.

Center for Persons with Disabilities, University of Utah UAP
President, Board Member, Committee Chair, Task Force Leader, Colleague, Mentor, and Friend

In recognition of your many years of service to the Association,

your tireless efforts to improve the lives of people with disabilities and their families, your years of service as the Director of the Center for Persons with Disabilities at the University of Utah, as well as your service on the AAUAP Board of Directors,

and as President of the Association.



Outstanding Achievement Award

Richard N. Roberts, Ph.D.
Center for Persons with Disabilities

University of Utah UAP

For his leadership in service, teaching, research, and community practice

in developmental disabilities with colleagues in the UAP network, and

especially his commitment to enhance consumers' choices,

community supports, and the honoring of diversity.

Meritorious Service Award

Nancy Striffler

Georgetown University Child Development Center
University Affiliated Program

For her dedicated work in early intervention and preschool services to bring culturally competent services and supports that respond to the diverse needs of the children and families

in all communities of the country.


2000 AAUAP Council On Consumer Affairs

recognizes the

University of Maine UAP


for their exemplary support of

persons with disabilities and their families

The Council on Consumer Affairs award is presented to the University Affiliated Program that

v      Has exhibited the strongest commitment to support the full and active participation of self-advocates and family members on its consumer advisory council;

v      Has evidenced leadership in the promotion and use of assistive technology to enhance the lives and participation of individuals with disabilities;

v      Has an outstanding record in providing and encouraging best or promising practices in person and family centered principles; and

v      Utilizes culturally competent approaches and overall consumer accessibility in all aspects of their mission (including publications, activities, and projects).



Special Recognition Award


Glennita Haskey
Center for Development and Disability
University of New Mexico UAP

For her innovative work serving Navajo children with disabilities and their families and increasing the understanding of the Navajo culture to enhance the training of professionals and paraprofessionals.


Young Professional Award

Amy Hewitt, Ph.D.

Institute on Community Integration, University of Minnesota

For her tireless efforts in identifying the critical knowledge, skills, and attitudes necessary for direct support workers and supervisors to facilitate a high quality of life for people with developmental disabilities and their families.



Anne Rudigier Award


This award is named for Ms. Anne Rudigier, a young woman who demonstrated that one individual’s commitment, energy, love of life, and respect for all people can be shared and can persevere through others.  This award is presented by her parents in loving memory of their daughter Anne

and the value she held in her life and in her work.


Ethel Chou

New Mexico LEND/Center for Development and Disability

A dedicated professional with the leadership skills, compassion and academic skills

to continue to make significant impacts upon the lives of children with or at risk for

developmental disabilities and their families.


AAUAP Past Presidents



Robert W. Deisher, M.D.



William M. Gibson, M.D.



Margaret P. Giannini, M.D.



Charles L. Davis



Robert G. Jordan, M.D.



John H. Meier, Ph.D.



Harvey A. Stevens



Paul H. Pearson, M.D.



Charles V. Keeran, M.S., M.S.W.



Phyllis R. Magrab, Ph.D.



Jack H. Rubinstein, M.D.



Victor D. Menashe, M.D.



Herbert J. Cohen, M.D.



James F. Budde, Ed.D.



Allen C. Crocker, M.D.




Marvin Fifield, Ed.D.



Alfred Healy, M.D.



Hugo W. Moser, M.D.



Michael J. Guralnick, Ph.D.



Ansley Bacon, Ph.D.



Terrence R. Dolan, Ph.D.



Gerald Golden, M.D.



Robert Stempfel, M.D.



Deborah Spitalnik, Ph.D.



Gary Goldstein, M.D.

1992 - 1993


Carl F. Calkins, Ph.D.

1993 - 1994


Bruce A. Buehler, M.D.



Valerie N. Williams, M.P.A.



Fred P. Orelove, Ph.D.



Sheryl White-Scott, M.D.



Penny Seay, Ph.D.



AAUAP Board of Directors


David M. Mank, Ph.D.                                                                David R. Johnson, Ph.D.

President                                                                                 Member at Large


Gloria L. Krahn, Ph.D., M.P.H.                                     Catherine McClain, M.D., P.T.

President-Elect                                                                Member at Large


Penny Seay, Ph.D.                                                               Kathleen Olson, Ph.D.

Past President                                                                         National Community Education

                                                                                                  Directors Council

Sheryl White-Scott, M.D.                                                     

Past President                                                                         Norb Ryan

                                                                                                Council on Consumer Affairs 

Thomas Uno, Ed.S.                                                              

Secretary                                                                                 Bruce K. Shapiro, M.D.

                                                                                                Member at Large

Keith A. Miller, Ph.D.                                                                          

Treasurer                                                                                Robert A. Stodden, Ph.D.

                                                                                                Member at Large

Robert Bacon, M.A.

Member at Large                                                              


Sharon Ely, M.S.

Council on Consumer Affairs


David T. Helm, Ph.D.

National Training Directors Council


Mark S. Innocenti, Ph.D.

Interdisciplinary Council



2000 Annual Meeting Planning Committee                 AAUAP Staff


Gloria L. Krahn, Program Chair                                     George Jesien, Ph.D.

                                                                                                Executive Director

Bob Stodden               Penny Seay

Sharon Ely                  Kathleen Olson                                  Donna Meltzer, Director of

David Helm                                                                                Legislative Affairs

                                                                                                Jacalyn Cox, Director of Operations

David Mank, (ex-officio), President                                             Lisa Lister, Project Manager

                                                                                                Gwendolyn Clark, Administrative Assistant

AAUAP Staff:  Jacalyn Cox                                                     Jodi Wick, Data Manager

Special thanks to:  Kimberly Walker

















Mark your Calendars



2001 Annual Meeting

November 1 – 4, 2001


Hyatt Regency Bethesda

Bethesda, Maryland