April 24, 2000
AAUAP STATEMENT OF SUPPORT FOR CONTINUED DEBATE ON
Dear Member of Congress:
The American Association of University Affiliated Programs for Persons with Developmental Disabilities (AAUAP) urges support for continuation of the legislative process to debate H.R. 3301, the Children=s Health Research and Prevention Amendments of 1999.
The AAUAP is a national organization representing 61 University Affiliated Programs and 15 Mental Retardation Developmental Disabilities Research Centers which conduct state-of-the-art research on mental retardation and other developmental disabilities, disseminate research findings, and provide services to individuals and families with mental retardation and developmental disabilities.† Research and training at these universities and hospitals over the past 30 years has resulted in improving the lives of millions of families whose children were born with a developmental disability -- helping them to live productive lives as members of our communities.† Other research has helped to eradicate birth defects and disabilities while new research is yielding great results in isolating genes that cause mental retardation and developmental disabilities.
However, much work remains to be done in critical areas such as autism,† Fragile X, and other chronic health conditions that challenge so many in this nation.† H.R. 3301 responds to these challenges through the expansion of numerous research initiatives.† The investigation into prevention, treatment and cures for chronic health and disabling conditions authorized in this bill will provide dramatic improvement to the quality of life of millions of children with disabilities.
This is a very important measure for our nationís children and their families and AAUAP applauds the work of the many dedicated Members of Congress who worked to craft it.† While the members of AAUAP recognize that there are issues that Members of the Committee would like to debate relative to H.R. 3301, we urge you to remember the bottom line is the health of our children.† This bill is carefully crafted, badly needed and appreciated by the
children and families across the nation who are deeply affected by public health problems addressed in this bill.† AAUAP urges all Members of the Committee to work toward speedy passage of legislation that will benefit children and families.
AAUAP applauds the work of the many dedicated Members of Congress who worked to craft this bill and urges all Members of the Committee to work toward passage of legislation that will benefit children and families.
David M. Mank, Ph.D., Director
Indiana Institute on Disability and Community