AAUAP PUBLICATIONS AND TECHNICAL ASSISTANCE RESOURCES
AAUAP / The American Association of University Affiliated Programs for Persons with Developmental
Disabilities, 8630 Fenton Street Suite 410, Silver Spring, MD 20910
Phone: 301-588-8252 / Fax: 301-588-2842 / Email:
This is a summary listing - additional resources are available. We are committed to
meeting accessibility needs. Availability of materials may be limited to quantities in stock.
AAUAP 1996 Resource Guide to organizations concerned with Developmental and
Provides information on projects, resources and contact information for UAPs, MCH Leadership Education in Neurodevelopmental Disabilities Training Programs (LEND), Mental Retardation/Developmental Disabilities Research Centers (MRDDRCs) AAUAP Associate member programs, toll-free numbers for health information and much more!...$8.00
- Annual Report of the AAUAP (1997).
Provides a concise review of AAUAP activities conducted on behalf of University Affiliated Programs. Contents include: President's Message, Executive Director's report, Legislative Relations, Annual Meeting, Maternal and Child Health Consortium, Technical Assistance, National Information and Reporting System, and more.
AAUAP Futures Papers (1996)
. Seven papers, each covering an essential, cross-cutting topic area, were written by a
variety of authors under the leadership of the AAUAP Policy Analysis and Planning Committee, and
reviewed by participants at the 1996 Annual Meeting. The AAUAP Futures Papers address the major
issues for each topic and provide implications for UAPs and the UAP Network. Futures Papers include:
. O'Neil, E.H.; Ruzek, J.
Technology and the University Affiliated Programs
. Dolan, T.R.
The Role of Government: State vs. Federal control of UAPs
. Fifield, M.
Rehabilitation, Job Training and Post Secondary Education:
Opportunities and Challenges
. Kiernan, W. E.
The UAP Role in the Revolution in Long-Term Care Supports
. Lakin, C.
Consumer and Constituent Partnerships: Evolving Relationships for UAPs
. Spitalnik, D.
Education and the UAPs
. Orelove, F.; Gamel-McCormick, M.; Neas, K.B.; Robinson, C. & Yoder, T.
- National Community Education Directors Council Speaker's Bureau (1996).
Developed by the NCEDC and the University Affiliated Center for Developmental Disabilities at West Virginia University. Lists consultants who provide outreach training through UAPs. Indexed by topic for easy use. Limited quantity - call for availability.
- Training Initiative Projects Replicable Activities Summaries (1995). Brady M.E.
(Ed.) and National Outreach Training Directors' Council. Limited quantity - call for availability
- Technical Assistance Task Force Subcommittee on Consumer Participation: Proceedings and
Recommendations. This new TA subcommittee was formed to enhance consumer participation,
identify strategies and provide UAPs with useful, flexible ideas. The report provides
recommendations regarding recruitment, compensation, roles on the management team and more.
- AAUAP Consumer Council Orientation Manual (1995). Horn, W. & Eddy, B. (Eds.).
This manual was developed as part of a Project of National Significance to provide information
about the UAP Network to members of the AAUAP Consumer Council. Includes history and background of
the UAPs, plus papers on Helping UAPs Become Inclusive and Consumer and Family Participation.
- Towards building an accessible and more inclusive University Affiliated Program (1994).
Bryen, D.N., Dumas S., Evans G., Hohlstein R., Nisbet J. & Behnke K. This subcommittee of
the AAUAP Technical Assistance Task Force provides an important "snapshot" of the UAP network as it
begins more systematic efforts to be inclusive. Includes a self-assessment protocol, TA Resource
List and strategies from the 1994 Forum on Inclusion.
- Proceedings: Minority Recruitment and Retention Conference (1991).
Livingston, N. & Rudigier A. (1991). Presents operational plans developed by ten working groups during a national minority recruitment and retention conference held June 1990 in Madison WI.
- Multi-Cultural Groups with Disabilities: An Annotated Bibliography (1991).
Kuehn, M.L. Contains select books, monographs, articles, proceedings and reports and is intended for use by those working with member of minority group who have, or are at risk for disabilities. Sections include: African Americans, American Indians, Hispanic Americans, and Asian Americans. Limited Quantity - call for availability
- Guidelines for the Development and Maintenance of Racially and Culturally Sensitive
Programs (1991). Williams, V.J. Provides cultural competence guidelines for use with
QUALITY ENHANCEMENT SYSTEM
- Program Criteria for University Affiliated Programs (1996). The program
criteria, used to assess the quality of the University Affiliated Programs (UAPs), became
regulatory on October 30, 1996. The overall purpose of the program criteria is to assure the
promotion of independence, productivity, integration and inclusion of individuals with
developmental disabilities. The Program Criteria are one part of the Quality Enhancement System
(QES), and provide a structure for self-assessment and peer review of each UAP.
- Program Criteria for University Affiliated Programs: Draft Performance Indicators
(1997). Unlike the program criteria, these draft indicators are not regulatory. Instead,
they provide examples of possible responses to the program criteria. The indicators briefly
describe plans, processes, outcomes or documentary sources, and provide a template for each UAP's
- Technical Manual on University Affiliated Program Core Functions (1990).
Bacon, R., Braddock D., Fifield M., Golden G., Guralnick M., Healy A., & Spitalnik D. Developed as part of the Quality Enhancement System (QES) for UAPs, this manual provides a thorough operational analysis of UAP Core Functions.
- The Role of Research in University Affiliated Programs: Four Discussion Papers (1991).
Buehler, B., Cox K., Fifield B., Goldstein G., Nisbet J., & Stoneman Z. These papers
discuss the role of research in UAPs and demonstrate the diversity and creativity of UAPs in
conceptualizing their research missions, and insuring research findings are made available to the
- Handbook for Conducting University Affiliated Program Site Reviews and Self-Assessments
(1989). Fifield, M., Davidson P., Garner H., & Stark J. A thorough discussion of UAP Site
Reviews. Includes pre-review preparation, self-assessment approaches, Review Team responsibilities,
list of key documents, reporting guidelines and more.
- Guidelines for the Development and Maintenance of Quality University Affiliated Programs
(1988). Davidson, P. & Fifield M. Provides a review of UAP expansion and development of
quality assurance practices, and discussion of program impact measures for universities, individual
and families, and service systems.
- AAUAP 1996 Resource Guide to organizations concerned with Developmental and Related
Disabilities. Provides information on projects, resources and contact information for
UAPs, MCH Leadership Education in Neurodevelopmental Disabilities Training Programs (LEND), Mental
Retardation/Developmental Disabilities Research Centers (MRDDRCs) AAUAP Associate member programs,
toll-free numbers for health information and much more!...$8.00
- Outcome Measures Conceptual Model (October 1996). Developed by the AAUAP
Outcome Measures Workgroup, this relational, dynamic model provides a response to National
Performance Review and similar initiatives.
- University Affiliated Programs (1996 Brochure). This color brochure provides an
introduction to the UAPs. Includes history, program map, brief data summary, and UAP telephone numbers.
- University Affiliated Programs 1994 Executive Summary Data / Statistics.
Describes the UAP mission, and provides data and examples of: services to individuals and families; community service activities, interdisciplinary training, research and dissemination, and topics of Training Initiatives Projects (TIPs).
- UAP National Information and Reporting System (1995). Assists UAPs in
documenting, analyzing and marketing their productivity through the NIRS system. The manual is a
working tool to explain various elements in the system and support utilization of data.
FY98 AAUAP-NIRS Data Dictionary.
Provides descriptions of National Information and Reporting System (NIRS) variables, coding process, and other information for preparing FY 1998 NIRS UAP data sets.
- Health Promotion and Disability Prevention for People with Disabilities: A Companion to
Health People 2000 (1995). Developed by an AAUAP Task Force with support from the Office of
Disease Prevention and Health Promotion, U.S. Department of Health and Human Services, this report
was developed as a companion to Healthy People 2000 objectives. Includes recommendations for health
promotion, and prevention of disease and secondary disabilities.
- University Affiliated Programs in Developmental Disabilities and Health Care Reform:
Implications for Systems Change, Partnerships and Collaboration (1993).
Williams, V.N.; Buehler, B.A.; Eklund, E.; Neas, K.B.; Robinson, C.; Rubin, I.L.; & Spitalnik, D.M. Developed by the AAUAP Work Group on Health Care Reform, this report describes the health concerns of people with developmental disabilities, the unique role of UAPs in the health care arena, and partnerships to promote best practice in a new era of health care.
- Health care for Youth and Adults with Disabilities: Policies and Partnerships (1991).
Eklund, E. (Ed.) (1991). Silver Spring, MD: American Association of University Affiliated Programs for persons with Developmental Disabilities.
- Human Immunodeficiency Virus and Developmental Disabilities: A leader's guide for a
workshop. Kastner, T., Grosz J., Harvey D., Hopkins K., Murphy A., Nathanson R., &
Rudigier A. (1991). Silver Spring, MD: American Association of University Affiliated Programs for
persons with Developmental Disabilities.
- Guidelines on Developmental Services for Children and Adults with HIV Infections (1990)
(2nd ed.) Crocker, A. & Cohen H. Silver Spring, MD: American Association of University
Affiliated Programs for persons with Developmental Disabilities.
- Technical Reports on Developmental Disabilities and HIV Infection (1989-1992).
- All eight Technical Reports now provided in one set!
- HIV Infection in Children: Medical and Neurological Aspects. Diamond, G. W. & Cohen, H. J.
- HIV Infection Legal Issues: An Introduction for Developmental Services. Harvey, D. C. & Decker
C. L. (1989).
- HIV Infection in Children: Some Ethical Conflicts. Macklin, R. (1989).
- HIV Infection in Adults with Developmental Disabilities. Nathanson, R.,Friedman, D. & Kastner,
- HIV Infection and Developmental Service Provider Liability: An Introduction to Tort
Principles. Harvey, D. C. & Decker C. L. (1990).
- Working with Families and Caregivers of Children with HIV Infection and Developmental
Disability. Hopkins, K., Grosz, J. & Lieberman A. (1990).
- The Development of a Comprehensive Pediatric HIV Developmental Service Program. Seidel, J. F.
- A Comprehensive AIDS Staff Training Program Model. Jacobs, R., Samowitz, P., Levy, J. M.,
Levy, P. H. & Cabrera, G. (1992).
- Leadership Education for Pediatric Physical Therapists (1996). White, S., Long,
T. Deubler, D., Kolobe, T., McEwen, I. & Nixon-Cave K. (Eds.). Proceedings of the 1995 Pediatric
Physical Therapy Training Conference and includes competencies with learning strategies designed to
produce leaders in the field of pediatric physical therapy.
- Guidelines for Administration as a Core Discipline in University Affiliated Programs
(1989). Kazuk, E. Dome Learning Systems, Inc., Johns Hopkins Institutions. Includes
Introduction to Administration: Training Coordinator's guide University-Affiliated Programs. Dome
Learning Systems, Inc., Johns Hopkins Institutions.
- A Guide to Interdisciplinary Training (1989). Knobeloch, C. (Ed.) Silver Spring,
MD: American Association of University Affiliated Programs for persons with Developmental
AAUAP expresses its deepest gratitude to the authors, working groups, and editors of the documents
listed here for their vision, dedication and leadership on behalf of University Affiliated
Programs. This resource list was developed by the AAUAP Technical Assistance Project, funded by the
Administration on Developmental Disabilities. AAUAP appreciates the ongoing interest and support of
ADD both for Techncial Assistance to the UAPs, and for many of the publications described here.